The past few weeks I have avoided blogging, stress, and the unknown is hard. Yesterday Carson has a scope surgery, along with his routine LP(lumbar puncture for chemo).
Before going to Surgery Carson had to do his 2 hour appointment at the Oncology clinic, he received his IV chemo (vincristine) we see his Dr. and also seen his social worker; Who had a special present for him, his Chemo duck! :) He was excited at this duck has a port just like him, and he is able to access it as well.
He went off to surgery with out a hitch. It breaks my heart that it is so "easy" for him to walk through the doors with out me, and that he is okay with going with perfect strangers dressed in green, and that he never looks back. I always tell him he is going to play hide-n-seek with the guys in green, and he has to find a good spot, and I will find him after! He plays along and goes.
We seen his ENT doctor before he went in, he said he was hoping that he would not need surgery, but he would have a plan after, and a good idea of what we should do.
It went quick; super quick, I have a " surgery routine" I run to grab something to eat, run back up to eat it, use the restroom, and then wait, wait, wait, game.
The Dr. came out and took me into a private room, (I dislike these rooms they are only used for "serious" news or "bad" news) He had pictures in had and explained that his airway is not better, it isn't improving, in fact it may be worse than it was before. He explain there was concerning evidence in his airway that he is aspirating liquids, because he has what they call cobble stoning. He said we need to do a swallow study. He also said that there is a study(oh how I dislike studies, but I love them as well since they are improving options for our kids) that we could qualify for a study in Michigan that would do a Stent, and it would be WAY less invasive than the surgery they would have to do... the surgery they would have to do CAN be performed here in Utah (great news) and it would require them to bust his chest bone, and require him to be in the hospital for 2-4 weeks and be a rough recovery after that. So the CHANCE that we could do something else would be a big deal in his case. The Dr. also told me Carson is but a couple handful's of patients in the US that are still dealing with his airway condition, because most are corrected by the body or surgery is performed by the age of 3-4 years old.
Enough about the medical side of things what we have been up to for the past few weeks....
The boys asked Santa for.... Carson; a green ball, a monster truck like daddy's, and go fish. Blake; a Hippopotamus :) the poor Santa about fell off his chair laughing and was very impressed with him.
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