I am convinced this kid is out to have the most rare conditions and stump doctors to no end! I am hoping 3 strikes he is out, Bronchial Malaysia, Leukemia and now muscle mystery!?!?!
Tuesday he had a EMG or...Electromyography (EMG) is a technique for evaluating and recording the electrical activity produced by skeletal muscles.[1] EMG is performed using an instrument called an electromyograph, to produce a record called an electromyogram. An electromyograph detects the electrical potentialgenerated by muscle cells[2] when these cells are electrically or neurologically activated. The signals can be analyzed to detect medical abnormalities, activation level, recruitment order or to analyze the biomechanics of human or animal movement.
Just talked with the doctors waiting for Carson to come out... 50% weakness in left leg don't push activity and need to follow up with our doc in a couple weeks repeat test in 6 months... Right leg was 30-40% decrease all lower leg could be a muscle thing all on its own not sure till we do another test! Just another condition to follow and watch to see if chemo has caused this or if it is something he would have had on his own! this poor kid can't catch a break! Thank goodness he is Tuff about it all and even told me he was excited to get his superman medicine "aka sedation" medication!
So what do we do from here? Well we are not sure. They will run yet another test in 6 months. This is not a pleasant test and they will sedate him for it. We need to have a second test in order to know where he is trending! We will see his neurologist in October.
This is his medications! This is a typical dose for him on steroids and some times we add 12.5 pills to this!!!!!!!!!!!! It is always a challenge to get these into him but we try our best to bribe him into taking them! What else can we do right/>
Here is what the test is! They had to "ramp" from a 7-8 to a 17! for him the doctor said it wasn't normal to have to test this high for kids his age!
Being BRAVE!!!
No comments:
Post a Comment