Yesterday Carson, our Tuff Boy had yet another surgery to explore and figure out what to do with his airway! Of course we still do not have answers. Our Doctor is hesitant on what to do with him. It is rare to first have this condition and second even more rare to not out grow it. As our doctor said "He is his own normal, he is Carson"! I think he hit it on the head! Yes he is his own normal and he will stump the doctors as much as possible! We were really praying and hoping for a miracle and that we would have a good plan of action, it didn't turn out that way. Our Doctor, Dr. Meir wants to take Carson's case to a conference and talk with other doctors about him. Brant and I also would like to talk to other doctors since the surgery that is suggested is a BIG one, and would require us to travel, and be in a hospital for weeks! So we are sending his information to CHOC(Children's hospital of Cincinnati) and CHOP (Children's hospital of Pennsylvania).
We are not sure if this is something he can live with and just be limited to what he can and can not do, or if it will worsen as time goes on. This pictures are kind of gross, but give a great idea of what is going on. The first picture is his Bronc tubes and you can see the left bronc tube is much smaller than the right one. almost 1/4 the size. it is collapsing but it is also doing well to open back up on its own.
On a good note... We got in touch with a foundation called Western Wishes! The organization is amazing! I am so impressed with them! They got our Tuff boy into riding a sheep and made him a little celebrity with the bull riders that night! He told us he is going to ride sheep, make money, enough money to buy a boat! :) Big Dreams for such a small guy!
Just like the boys' he thought he was just the same as all those bull riders! :)
I love this picture of him! it is such a sweet moment, and such an amazing man that got on the bull with Carson and was so sweet to him! Tyler Farris is his name!
A vest that all the bull riders signed for him!
Him tipping his hat to the boys! :) and wearing the riding glove!
Getting on, who needs their mom, he is Tuff and for sure wasn't needing my help!
Being a goof ball! :) this is what keeps us going. He can always make us laugh!
We can no loose hope! No matter what I will always have hope, till the day 10 doctors tell me there isn't any! I know in my heart we can beat this, and will! We just will have one bumpy road and journey along the way! The climb song is such a great song, I am finding music to be therapeutic to both Carson and I! Finding songs that mean something and singing them with him, gives him and me hope! :)
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