An Eye opener

"You will learn to be a fighter.  You will find strength you never realized you had and overcome your fear of confrontation.  You do this because not doing this is not an option.  That baby girl needs you to be this way. And you’re not about to let that girl down... Speaking of medical things, your days of never seeing the pediatrician because your kids are so dang healthy?  Those are over.  You will get frequent flyer miles at the doctor’s office.  You will collect cards of all sorts of medical professionals.  You will learn which blood lab does the best blood draws on children.  You will be able to write things like “epicanthal folds” and “oxcarbazepine” without thinking.  You will also know that as much as you’re dealing with, you’re grateful that is all you are dealing with.  Because there could be more, it could be worse" http://phoebeholmes.com/2013/05/22/to-the-me-of-ten-years-ago/

I stole this from another mom's blog... I hope I can look back and have this much faith in myself. I know that I have to fight, because if I do not, who will. I am his mom and I do not have a choice but to fight. I know more medical terms and how the body works than I ever thought I would. I always wanted to be a nurse, just didn't want to learn this way. I know I am grateful each day that "leukemia", and "bronchial maylsia"  is all we are dealing with. IT COULD BE WORSE! I see it each day we enter the hospital, or I learn of a cancer cuttie getting their wings, it happens more often than I would like to say. I vowed last year that we would make it through this, and that we would do so by making the best of it. Life is way too short to live for tomorrow, this is the one thing I have learned.

Today Carson got braces on his legs, I felt so angry knowing this could effect him long term, I have always told myself that it will only be 3.5 years and it will all be done. I was slapped in the face with the fact that some of the effects could last a life time for him. I hope his legs are able to be "healed" or fixed by the braces, but only time can tell.

One time per month he takes 19 pills, it is always on a Thursday. The yellow pills are Methotrexate, and the big white round one is 6MP and the little white ones are steroids. Plus the vitamin. :)

They said for him to wear knee high socks so the braces didn't bother his legs. He LOVES silly socks as we call them, so this was not a hard thing for us to do. He was more than willing to wear the socks and put the braces on. I had someone say they are inspired that I make things fun, I have to, he is 4 he doesn't see the whole picture, it if was all torture for him his life wouldn't be what I would want for him. So we make hard things fun, because it makes it easier for both of us. We include Blake when we can, like Blake taking his nightly Jell-O water shot or as he knows them "his medicine". Both Carson and Blake like to do things together, so when we can, I always try to include Blake or find someway we can. I was happy he was excited to wear silly socks with us tonight.