Not sure where to start. Since Thursday it has been a VERY long weekend. I try my best to prepare for vinc (chemo) and steroid pulses. This is the worse part of treatment. I have said it a hundred times. 7 days out of the month I have a confused, crying, angry, upset, sad, happy, giggling, back to mad, and upset child; along with a sibling who isn't sure what has changed but knows to run for his life as fast as he can when he needs to. If you didn't live it with us each moment of the day you wouldn't believe what we endure during this week. He is always afraid there isn't enough food, he is always hungry, he is sometimes just so overwhelmed he doesn't know what he wants or even what he needs. It takes a lot of deep breaths, lots of Pepsi, and lots of showers so I can cry with out them seeing.
On the upside his Birthday is in 4 days. He will be 5, and in treatment for 20 months. He is looking forward to his birthday. I am looking forward to it. Each day we have is a blessing, each smile we get is something I cherish.
We are taking taking him to the monster truck rally here in Salt Lake City. I am not too thrilled but the boys are and that is what counts.
Both Carson and Blake got a gift in the mail on Wednesday when we came home from Carson getting treatment. CHAPS! They were over the moon. Blake's face was one I wish I would have had the camera out for. They were given to the boys from a sweet family, The Garcia family! I can not express how thankful I am for their amazing gifts. These will be the best two looking cowboys in town for some time to come! Carson can't wait to ride sheep, Blake isn't sure he wants to try, but he loves the Chaps! :)
I wanted some cute pictures... but it was way too cold, muddy to do so. This was about all that I got. :)
Carson had his second sleep study. This one seemed to be more intense than the last one. There were more wires, and more things attached to him than I thought possible. We have to wait a good two weeks to get the results, but I am hoping it is showing improvement with his airway.
No comments:
Post a Comment