Monday, February 10, 2014

Touching Story... Plus Cowboy Pictures

As many of you know, CBR has taken Carson, our Tuff boy under their wing. They have been such an amazing part of his journey this past year. He loves when I show him pictures of him being on their page; He will say " I am on the cowboy page"  I have became friends with Sara Rempelos one of the CBR family members. When we went to Cheyenne is July last year; I forgot to grab something to say thank you. The only thing we had was a bracelet that my mom was wearing; she gave it to Sara with tears in her eyes to tell her thank you. The Cheyenne Trip was more than just a wish come true for Carson; the smile, and the heart felt love we felt that few days changed our journey forever! 

Tonight Sara shared this with me "i want to tell you another glorious bracelet story. i gave one of the ride rank ones to a gal who is fighting leukemia too. she's an adult, and she's really having a hard time with chemo. her fiance is former pbr rider JT garcia, who also works with cowboys for cancer and endorses 'sayiwont'. he is a survivor. he saw the bracelet your mom gave to me and asked me where i got it and i told him the story. all of our eyes were wet by the time i finished telling that story and i took the bracelet off and pressed it into his hand. he's hoping to come back and ride with cbr and i think if he succeeds, he'll be a mouthpiece for carson. he said he'll wear it with pride every time he rides. i miss that bracelet, but it needed to go with him, you know?"

I was in tears reading this; and again I am crying re-reading this. Nicol Torres is the gal's name. JT Garcia is her partners name. Being angry with cancer is so easy. The pain it causes Carson is awful. But then to stand back and think of all of the things we have done, the people we have crossed paths with; the blessings that have came from the journey (did I say that Blessings? yes there have been blessings).  Sara is out there spreading my child's story. She is out there working hard to make sure people know who Tuff Boy is. Each person she tells, gives us another up on cancer.  Those she is telling are always sending encouraging words, and prayer. Believe me when I say we feel the love.
Thank you Sara! 




This is the photo of the bracelet; that she has passed on to someone else! 


We were able to get some amazing photos done of the boys today! I was super happy and over joyed at the turn out of these pictures. I had to bribe the kids for smiles and to be good; but hey it worked! They love the Chaps Jag Saddlery made for them! 








This shows the brother love! They are best friends! 
























Sunday, February 9, 2014

February update

Not sure where to start. Since Thursday it has been a VERY long weekend. I try my best to prepare for vinc (chemo) and steroid pulses. This is the worse part of treatment. I have said it a hundred times. 7 days out of the month I have a confused, crying, angry, upset, sad, happy, giggling, back to mad, and upset child; along with a sibling who isn't sure what has changed but knows to run for his life as fast as he can when he needs to.  If you didn't live it with us each moment of the day you wouldn't believe what we endure during this week. He is always afraid there isn't enough food, he is always hungry, he is sometimes just so overwhelmed he doesn't know what he wants or even what he needs.  It takes a lot of deep breaths, lots of Pepsi, and lots of showers so I can cry with out them seeing.  

On the upside his Birthday is in 4 days. He will be 5, and in treatment for 20 months. He is looking forward to his birthday. I am looking forward to it. Each day we have is a blessing, each smile we get is something I cherish. 

We are taking taking him to the monster truck rally here in Salt Lake City. I am not too thrilled but the boys are and that is what counts. 

Both Carson and Blake got a gift in the mail on Wednesday when we came home from Carson getting treatment. CHAPS! They were over the moon. Blake's face was one I wish I would have had the camera out for.  They were given to the boys from a sweet family, The Garcia family! I can not express how thankful I am for their amazing gifts. These will be the best two looking cowboys in town for some time to come! Carson can't wait to ride sheep, Blake isn't sure he wants to try, but he loves the Chaps! :) 




I wanted some cute pictures... but it was way too cold, muddy to do so. This was about all that I got. :) 


Carson had his second sleep study. This one seemed to be more intense than the last one. There were more wires, and more things attached to him than I thought possible. We have to wait a good two weeks to get the results, but I am hoping it is showing improvement with his airway.