We were at PCMC for 2 days this past week. One for a LP for them to remove spinal fluid and replace it with Chemo. He gets these every 3 months so it is nothing new to us. The next day we had a MRA. This was requested by CHOP and we were hoping that it would show he had a blood vessel wrapped around his bronchial tube. It didn't. If it would have shown that it was an easy fix. We do not have a clear plan, PCMC here is working on getting the medication needed approved, and CHOP is working on getting all the ducks in a row, before we go out there. They are working with all 8 doctors on their team and our insurance to get everything in line, in case PCMC can not approve the medication needed. I think his airway issue is causing more stress than his cancer! The unknown is hard. All the doctors have told us they are not sure why he has not out grown this, it is rare to have it, and even more rare to not out grow it by age 3 or 4. His cancer complicates it as well.
Make a Wish Utah puts on a Halloween Party each year! We are so happy to attend it. Carson loves to go! This year the boys picked out their own costumes. Blake was Goofy and Carson Scooby. :)
We were able to go to Moab for a night. I had to take a foster boy to court and we made a vacation out of it. They boys LOVE LOVE LOVE vacation houses, aka Hotels, especially if they have swimming pools. They were out cold by 715 and I enjoyed some me time while they slept.
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