Sunday, September 22, 2013

The craziness continues


We got an offer from RMR raceway to go out and let Carson be the Pace Car driver! He loved it! He thought it was cool to ride in a fast car! He enjoyed the races and it was great to not worry about him being around germs and such. It was a much needed night out! 



Both the boys were AMAZED by this cup in the infield of the race track, they wanted to know when they could get a drink! :) silly boys! 

We had a family BBQ with the Hancock's. We don't see them as much as we would like, so it was nice to catch up with them. We got to meet their new cousin Tucker. He is cute the boys loved him. 



In their camo ready for Hunting, even though we are not able to go! 
We hope in 2 years we will be able to buy another trailer and go out hunting, but for now we will just pretend. 


We have been doing better. His cough is still here, and we still do breathing treatments some nights. the air is changing and is dry, we now have 2 humidifiers going in our house to help.
  Carson has been going to pre-school, giving me time with just Blake. It is nice to just be with him, since I spend a lot of time with Carson doing medications, doctors visits and such. 
We have been blessed to have a few people donate to our family, many of you came out to eat at Chili's. Every penny helps, as we pay so much out of pocket, plus the travel to and from and the unexpected ER visits that seem to always pop up.  It is a blessing to have so many help us. I can not wait till we are in the position to give back to others. It is a humbling experience to have other help us. 




Fighter!

























I have hear a million times to be strong! 



Wednesday, September 11, 2013

Carson Getting his Port Accessed!


I don't know how many times, a nurse has a jaw dropping look on her face that Carson uses nothing to "numb" his port. To him it is more tramatizing to use something on it, it means another medicine. A sweet Nurse Tiffany who got breast cancer(booo) said it does hurt to get it accessed and it kind of pinches. So I guess he lives up to the name Tuff each and every day. I hope Tuff Hedeman doesn't mind sharing his name! :)  
This video was taken at PCMC to show other kids option and how easy it is to access your port. Most kids are not this okay with it this, and it takes time to learn that it isn't that bad! Carson has been amazing since day one and always been brave about getting it accessed. 


SO I thought I would share with you what they now share with other kids at PCMC

Dr. Carson