another week

We are on the down hill climb of steroids. It has been a hard 3 weeks. We have had many good days, but some bad days. Most of the time it is just bad moments.

My mom's coworker made "hats" for Carson. She did an amazing job and He loves them. We all put them on. I figure if we make it "cool" to wear the hats then he will want to; and if we all wear them he won't feel so different.

 Even Grandma got to wear one! My mom and Bran'ts mom have been wonderful to have around. It is great we live so close to family!

 Blake and I met a great friend Amanda Chadwick and her kids(Tessa and Tori) at the park, for a lunch date! I was happy to see Amanda and Blake was happy to get out of the house.

 Blake has to be a "duff ball". Love having him around to make us laugh and make light of everything.

He had to wait 4 hours to get food, since we are normally only at "clinic" for an hour and half I didn't plan for a meal. When the nurse asked him if he wanted to order lunch he said "nuggetts and pizza!!" And that is what she brought him :)

Carson had a temp of 101. So we got admitted for 24 hour observation. I think it was a combination of fever and his breathing. Since he is so "swollen" he is working harder to breath. He also had high blood pressure, so we got some medication for that and were sent home the next afternoon.

While we were at the hospital Uncle Travis watched Blakers. I was worried about leaving him with Travis but knew he would take great care of him. Blake had a #2 diaper, uncle Travis tossed him in the tub and "hosed" him off! Whatever get the job done! I am impressed he even changed him!

This coming Friday is our day 28. Meaning 1- NO MORE STEROIDS, 2- he will get his bone marrow biopsy, 3- he will have his broncoscopy so the doctors can make a plan to fix his air way!

We are crossing our fingers his counts will come up and he is able to spend some time at 7 peaks this summer along with doing some camping.