Our Trip

Carson had his 4 year old wish come true! To Go To Mickey Mouse's House!

 

We Left on April 2nd! We left bright and early our plane left at 7 so we had to be up and out of the house by 530! The kids were super excited and didn't mind waking up so early!

 

We flew to Atlanta Georgia. Carson was so tired by the time we took off he fell asleep before we take off. Blake thought it was neat, but feel asleep shortly after take off.  IT was a long flight but both kids did amazing. Once into Atlanta we had a short 1 hour flight to Orlando. the kids were wide awake for that one and enjoyed looking out the window. Uncle Travis was on our flight. Grandma Georgiana and Shawn took a different flight.

We all got to the airport and were ready to be on VACATION.

 

We got to Give Kids The World. The most amazing place I have ever stayed. Carson was treated like a King, and Blake like a Prince! They rolled out the red carpet for the kids! We stayed in a twin home that was beyond awesome. It was a tight squeeze with 8 of us but we enjoyed it!

 

 

The first night we were there was Mayor Clayton's Birthday Party. Of Course Shawn and Travis didn't want to take pictures but they soon learned no one is safe from the Rabbit! He will sit on you, chase you, or do whatever it takes to get a picture with you! :) Thank you Mayor Clayton, we now have pictures of Uncle Shawn and Travis!

 

We swam as a family, it was cold but we enjoyed swimming!

 

We could eat ice cream as much as our heart desire! :)

 

The next day we started our MEMORIES that we had waited to make! 

First in the door we got to see Pluto! :) The boys loved him!

 

 We must have rode splash mountain 20 times! CARSON loved it! :) wish Blake was tall enough to ride it!

We got to spend one day at Daytona. It was cool to see but not worth a whole day, with the kids! They did think some things were pretty cool! :) 

 

 

 

 

 

 

 

 

Shaving, Shaving, Shaving, GONE!!!!

We were able to take part in amazing event for the St. Baldrick's foundation! Carson's great Grandma Joy shaved her head to help raise money for the event.

Before....

During...

 

 

 

After!

 

Blake and I making silly faces!

We were able to spend the whole day there having a great time! We enjoyed it so much!

After we grabbed some dinner! Carson loves Little Caesars breadsticks!

Carson and Grandma Joy made front page news in Utah county! They are both over the moon about it!

 

Carson has been doing great with treatments, he is getting good at taking his medications each night! WE leave for Disney World on April 2nd, and he could not be more excited! We are looking forward to a great vacation!

Update!

Our computer has been out of commission for a few weeks. So here is an update!

 

 

Carson has been feeling pretty good over all.

He was able to start going to pre-school one day a week! He is loving it!

He got a virus and had to have IV fluids at home He insisted that Mickey also have a port and get fluids as well. I love that he wants to "help" and have Mickey do the things we have to do to him. I think it makes him feel more in control.

Blake has been a trooper and done great with Carson being sick.

 

When he doesn't feel good he always likes to cuddle! I love the cuddles but would rather have him feeling well.

 

We do things most families do not, like have picnics in our kitchen because it is COLD and the kids thought it would be fun! We had to have green pancakes and he loves to eat them.

We show brother- love!

 

So Carson and treatment! We started maintenance! YAHOOO. It has been crazy it is a lot more at home treatments. He takes pills nightly and also on Thursdays he takes 13 pills in all. It is insane how much he takes.  We have adjusted to him having to not eat or drink 1 hour before his medications and 2 hours after! It is hard to only allow him to drink during this time. He is a milk drinker and does not like that he is unable to drink milk. Today we have an appointment with his ENT doctors to discuss his breathing, and his O2 levels dropping while he is exercising  We are hoping just and inhaler will fix it.  But will have more answers this afternoon.

I posted this on his facebook page... but wanted to share here as well.

"On the great days you live...on the not so good days you learn." This has rang so true for us the past 5 days. This round of steroids have been rough for Carson, and rough on us as a family. The up's and downs are hard. He is only 4 and does not understand why this is all happening. On the not so good days, we learn; Learn how to help Carson express what is wrong, we learn what medications help ...the best, we learn to help Blake entertain himself, learn that patients is key. Learn that cancer sucks! On the great days we live, we enjoy each moment, we laugh, play, and run around, we enjoy time with friends and family, and remember to count our blessings. I love this quote for everyone could say there are good and bad days, but I like to think of every day as a blessing, and that there are only great, and not so good days!