We embakred on a journey Dec. 9 to Philly to Children's hospital of Philadelphia. I was a ball of nerves waiting for the trip and waiting to see doctors. Brant has a cousin who is out there for school, so we were able to visit with him and he took us to see the Liberty bell, and around the history of Philly. We even got to eat an AMAZING philly cheese steak(YUMMMM). It was great to have family near if we needed them; and it was great to see them, it has been a long time since we were able to see them.
We spent the next day at the hosptial ALLLLLLL day long. It was filled with many doctors and tests and many questions. I answered the same question about 20 times. I was done, Carson was done, and Blake was just plain confused why we would spend all day in a hospital.
That night after we got back, we had some awesome cowboys come out and see Carson. He was excited; but didn't show it well. It was a long day and then to have to sit for a moment to talk wasn't what he had in mind. So we got a few pictures, they brought the boys some sweet gifts and we are able to talk to them for a little bit.
The next morning we left for CHOP to have a scope surgery done. Though I knew we were going to be okay; it was odd being in a different hospital where things are so much different, and they are more fast pace.
He went in; and with in 30 minutes he was out.
This is his airway; it is so odd for him to have such a small airway, and he should have grown out of it. On Thursday one of the doctors mentioned it seemed like he had asthma, I was kind of shocked, we flew clear across the country for asthma? The next day he confirmed he does not have asthma; he has a severe case of Bronchial Malisia. this pic above shows how small it really is. For now we are not going to do surgery, we are going to start a medication called Behanechol; it is a study to use it on Peds but we are hopeful this will make it so his airway does not collapse. The doctor was surprised of how well his body was able to make up for the small airway.
We were grounded for 3 days due to blood clots; they did not want us to fly him home just in case! So we went up to NYC! It was fun the boys loved it.
We were so blessed to have angels help us along the journey. We met some amazing people; we were able to learn so much; and able to be blessed. There are angels among us... you just have to accept them. They show us how to live, teach us how to give, and accept gift. The ray of hope is the most important. Hope, and faith get us so far in life; we have to have hope, we have to have faith that our journey is marked out for us, and that we will have have faith that it is what is right.
