Tuesday, May 29, 2012

Shaving his head... and Car Wash!

The time has came... We shaved his head he had some spots starting and I didn't want him to loose it spot by spot. I shaved his head along with one of our foster boys heads in the afternoon. It meant a lot to our foster boy to shave his head when I did Carson's. I wish I could post a picture of him before and after, since he had long "skater" hair. When daddy got home we shaved daddy's.

We are not sure why he thinks this face is so funny, but he does! It is his own little face that he loves to pull. He is camera shy now so when we can we take a picture!

He was watching me cut daddy's hair. He enjoyed watching daddy, get hair like him!
Some amazing friends of our family did a fund raising car wash for Carson. We can't even say THANK YOU enough to Sam, Cindy, and Parker Adamson them for all the hard work they did! Also a big thank you my mom, and brother Shawn and Travis, my aunt Jayleyn, Jesse, Gabby, Jersey, and all the foster boys(I can't mention names for privacy reasons) who came to help, we could not have done it with out any of you! We washed what felt like a million cars, but it was only maybe 150. Carson enjoyed sitting in his camp chair and getting up to walk over and help for a minute and going back to his chair. The doctor on Friday said we didn't need to wear the mask unless he was playing in sand or dirt. I was thrilled since the mask is hot for him.
Since he is on steroids he has gained 9LBS. They said he will loose 90% of what he has gained a few days after stopping the steroids.

Even his little brother jumped in to help.

I am sad to see his hair gone, but now he is my little cancer cutie(a saying I learned from other moms). He is an amazing strong little boy.

Saturday, May 19, 2012

Day 9... It has had time to sink in. He has ALL Leukemia, our chance to beat this is 90%! I have no doubt we will win this and he will be stronger and love life so much more! He is on steroids. When they told us he would have "tantrums" they were not kidding. Tantrums is not even the word, rage seems more like it. They only last minutes, but those minutes are hard to get through.

But the good news is the steroids are making him EAT. The first day home I asked him what he wanted for breakfast(10:30am) he opened the freezer and said "nuggets" I cooked 6 and he ate them all gone. I cooked 3 more, and he still wanted more 3 more and he was good. 12 chicken nuggets for breakfast wasn't something I expected. From there on out, he has done a great job at eating anything he wants!

 This was dinner tonight. Taco Amigo, Chicken Nuggets, and Sprite!
 Blake's serving! This little guy is adjusting to life back at home. He is such a goof ball. He lightens the mood with his smile, laugh, and funny behaviors.
 Earlier in the day I went for a walk while the boys drove their car.
Carson loved being outside!
We now have 2 Cozy Coupe's. Since Carson loves his CAR, and Blake wanted one as well. Our small house has been taken over by toys. Since we are inside most the time, anything goes, including big cars! 

The Start to our Journey

May 10th, 2012 will be a day I will remember forever! After being in the hospital for the 2nd time in under a month; I was anxious to find answers of why my little boy was so sick. Our first visit was in April they said Carson has got Parvovirus and that suppressed his red blood cells. After 2 bags of blood he was feeling good and we were able to go home. On May 7th, 2012 I called my dad to let him know he wasn't going to watch the kids, since Carson wasn't feeling good and I was taking him to the doctor. I burst in to tears sending my dad in a rush to get to my house. I knew something was wrong with Carson. My dad agreed that I should take him to the ER. So I rushed him to the American Fork ER. There they did testing and said he had "0" netropeana (spl?) part of his white blood cell. I would latter learn that is your "soldier" cell that fights infection. After 4 hours of waiting they told me I had to take him to Primary Children's. Luckily by that time my mom was able to be with me. We got settled in at PCMC that night and waited for answers. Wednesday we seen a hematologist named Dr. FluChel. He did a bone marrow biopsy. Thursday about 10AM he came to tell me the results. He walked in with a chair and sat down. The look on his face told me it wasn't good. "He has leukemia" came out as he sat down. My heart sank. He continued to talk, as I sat there in a blur. Why my little boy? Why has life been so hard for him? He asked me to call my husband, I feared that call. I pulled myself together and called Brant. He was quiet on the phone, and the doctor explained to him what he had just told me. We set a meeting up for noon to meet with the doctors. I then had to call my parents, and Brant's mom to come to the hospital to meet with us and the doctors. Carson slept through the phone calls thank goodness. And that is how our Journey to beat Leukemia started.



This was our first visit to PCMC while we were in the PICU.
This was our visit to American Fork ER
Carson and I waiting for answers.
Our escape outside before we got answers.
How is he sick? He is so happy!

Off to surgery to get his Port in. He was so brave and had to wear moms glasses. He made things easier for me. Though I should have been making things easier for him.